I've held off from writing this for a while now, because it's a bit icky. However, if it makes one person out there feel that they are not alone, then it's a good thing.
(Also for future reference, little A will be known as Ajax, from her on in! He's not that little anymore)
I've believed for a long time that Ajax has Sensory Processing Disorder, along with his autism. He doesn't just struggle with things like hair cuts (he gives my hairdresser a right workout!), he struggles with clothing, most food. The list goes on, it's become so normal for us I can't even remember all the things we've changed for him!
The thing that no one talks about though, is the bowel movements. He hates the feel of pooping. I think it must have hurt once, now he refuses to let them out at all. This has left him totally compacted, to the point that he constantly leaks. In easy to understand terms, there is now a large bowel movement stuck inside, and liquid is constantly leaking around it as he has no control.
At 8 years old, he has to be back in pull ups (nappy like pants), permanently. He also has to be on a form of laxative for 9 months. His bowel movements need to be kept soft, so that his back passage can return to a normal shape.
Unfortunately, he still doesn't want to let it out and is panicking when he can feel things happening. We are trying to work out how to get around this. Basically we just have to keep telling him it's ok and hope that it doesn't hurt when it does come out.
If you have a child with SPD, don't panic. They feel things very differently to you and I. Ajax can't cope with some silly little noises, but loves AC/DC blasting in the car! It isn't normal, but it's not strange or weird either. Just different.
Most of all, don't forget to:
Also, I'm always available on social media, if you need to talk, you can find me anywhere as Ojosworld.