That may sound a little dramatic, but it's how I feel. I don't feel relief, or like a cloud has lifted. I feel like I have survived, not too damaged, a tough couple of days.
It's not easy in our house, this time of year, anyway. The wait for Xmas is tough for children that don't understand the concept of time very well.
When "remember when I.....", relates to something they did a couple of hours ago, 4 weeks is a lifetime!
Saturday RJ kicked of BIG time.
He always goes to cookery class on a Saturday. He loves this class, it's a great mix of cookery and play, he's even made new friends. This week he hadn't listened, however, when he was told to come and get his stuff for the oven, he was too busy playing. This resulted in him leaving the class half an hour late. This is neither fair on the, saint like, woman that takes the class, or the parents waiting in the car outside. This past Saturday it was husband.........it did not end well!
He told Ross off for not listening and leaving him waiting outside. They then went to the local video shop, to have my eldest sons disc cleaned, RJ refused to leave the car.
By the time they had got home the Mr, quite rightly in my opinion, had told him off. He was in the wrong, and needed to know this, he also doesn't have the right to refuse to get out of the car, stopping us all from doing anything.
Then it escalated.........
I could see, as soon as they walked through the door, that things were amiss. RJ went straight up stairs, threatening to throw his stool across the floor. He was told, again, that this was unacceptable. That's when he came downstairs and started punching himself in the head!?
I did manage to calm him down, within half an hour he was after food, all forgotten!
Cut to today, the dreaded hospital appointment for little A. It's been playing on my mind, as I knew we had to put eye drops in. This really isn't something fun to do, to any child. My eldest had to have them, when he was a toddler. But for little A?!
It has taken us until now, almost 6, to get his hair cut. I am not the parent that can pin my autistic child down, screaming, to do something like this. I just cannot see any benefit in doing that. Would you make a child with bad legs walk?! No, of course not.........So why is OK to push a child, that is sensitive to touch, be handled?
I did try with the eye drops...........he completely freaked out.
It is one of the most traumatic things I have ever had to do. Thankfully Mr. Ojo had taken the day off, we knew it was going to be tough.
When we got to the hospital, I will be honest, I was looking for a fight. I was ready to tell the 'eye doctor' (can't spell the other word), to give me the discharge papers. I was expecting them to want to put more eye drops in, and I wasn't going to allow that to happen! I was incredibly tense, especially as we were sat in the waiting room for 30mins, when we had be told he would be seen pretty much straight away.
We walk into the room, after a little discussion about the eye drops, and why there was a problem. The doc had a quick look in his eyes and confirmed they had not worked..............The Dr simply said.......OK. He said his problems were not significant enough, from what he had seen, to require them to be used again! He agreed that it would be too upsetting and suggested we come several times to see how little A did with a couple of eye tests. He realised the issues and, decided that would be the best option, to get a better idea of the problems little A may, or may not, have.
And that's it.
We will have an appointment sent out for the new year, then he will have a couple more appointments. This way, as little A feels more comfortable with the surroundings, he will co-operate more, giving them a better idea of his eyesight.
We (me and the Mr) have survived it all, the last few days. We are battle scarred, and in need of a little respite, which we won't get.........
But we survived!
x OJO x