Wednesday, March 30, 2016

Thoughts and Ponderings:

I thought I would write a post, each week, just with my thoughts about things I've seen or read. Things that have bothered me, or made me smile.

One of the top things to talk about is 'The A Word', a BBC drama based around a family that has a child on the spectrum. I don't feel negatively about it, in particular, but I won't be watching. I did sit through the first episode, and I will admit it made me and Mr. Ojo talk about it, up until midnight.

However, it didn't reflect OUR story. I'm sure it didn't reflect many peoples, because this drama can only reflect the family it's portraying. Just because our children are on the spectrum, doesn't mean they are the same. I have 2 children on the spectrum, they couldn't BE more different!

I still think it will be a good, informative, drama. Particularly for those who don't have children with autism. 

Has it shown the lack of support? In my opinion, the more you can cope, the less help you get. I've just 'got on with it'. I know how to parent my children. I know what they can and can't do.

As Autism awareness day approaches, and I am one of the people that will support turning the world blue, it's good that a television programme is helping us.

I spent a lot of yesterday morning talking to a university student, about what it's like to live with children on the spectrum, the changes we have to make etc. 

It really surprised me just how different how lives probably are. How my 'normal' is so much different from others. But, that's the point, it's MY normal.

As I sit here now, typing this, my youngest is under a blanket, with a load of lego and an Ipad. My 13 year old has just come downstairs (it's 14:46), he won't be here for long. School holidays lack routine, they don't like this, they don't know what to do. My 18 year old is off out with friends.

Apart from the eldest, they hate leaving the house, so I will be spending the Easter holidays doing pretty much this.

I guess what I'm saying is, if you don't have children with autism, watch The A Word. Understand that some peoples day to day lives are TOTALLY different.


Mostly, just live your own life, let others live theirs.

10 comments:

  1. I haven't seen The A Word yet. I have been recording it though. I have heard good things about it but your right everyone is different. I know a little about Autism so a show like this is helpful to learn more.

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    1. Hopefully you'll enjoy it, it's not all autism, there is a family story to it too xx

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  2. WE have problems with the holidays too, not the lack of structure but my kids just wanting to do 'their' thing which usually involves a screen and a keyboard and it's so hard to tear them away even to go to the park! I'm loving The A Word, it's quite a good drama depicting 'one' family's way of dealing with autism.

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    1. It's screens that dominate my little one, my other one misses the structure more x

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  3. Oh gosh, yes, THIS! Totally agree, each to their one. Everyone's life is different, not just those of us with children with autism. Who's to say who is right with their choices?! We also struggle to leave the house, and I know people think I'm 'a soft touch'. Luckily, I've learnt not to care. No-one else lives my life (except my immediate family) and we're doing fine :)

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    1. I will admit, I'm still feeling the guilt about not getting out! I really have to gain a tougher exterior x

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  4. Or to their *own* even, not their one :D

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  5. I watched this and although I know very little about autism I did think it was a good insight, although I'm not sure how accurate it is? Thanks for linking up to the #BinkyLinky

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  6. I watched the a word I know very little of autism but I felt the show was given a lot of dramatic licence because of all the side stories I think it hey are possibly missing what the show should be about Thanks for linking to the #binkylinky

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  7. I haven't watched the A Word but this is the second post I've read about it. I think it sounds like all other parenting type things, everyone is different. If you have a child on the spectrum it doesn't mean you'll take the same journey as others.
    #binkylinky

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I do love comments and read them all, please be nice and tboughful to others x